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Alzheimer's Non-Alzheimer's Dementia Research Associations
Alzheimer's Association www.alz.org
The national Alzheimer's Association, as well as its 82 local chapters, provides information, support, and assistance on issues related to Alzheimer's disease, funds research on dementia, and advocates for improved public policy. In addition, the Alzheimer's Association provides educational programming for professionals, family caregivers, and the general public.
Alzheimer's Disease Education and Referral Center (ADEAR) www.alzheimers.org/ Use this site to find current, comprehensive Alzheimer's disease (AD) information and resources from the U.S. Government's National Institute on Aging (NIA).
Alzheimer Europe www.alzheimer-europe.org Alzheimer Europe aims to improve the care and treatment of people with Alzheimer's disease through intensified collaboration between its member associations in Europe. Includes contact details for associations around Europe. Available in English, French, Greek, Italian, Spanish, Dutch, Portuguese, Swedish, Danish and Finnish.
Alzheimer's Disease International (ADI) www.alz.co.uk is the umbrella organisation of Alzheimer associations around the world. They aim to help establish and strengthen Alzheimer associations throughout the world, and to raise global awareness about Alzheimer's disease and all other causes of dementia.
Benjamin B. Green-Field Library & Resource Center www.alz.org/us/rtlibr.htm The Alzheimer’s Association’s Benjamin B. Green-Field Library & Resource Center collects a wide range of materials related to Alzheimer’s disease and related disorders and provides services to family members, educators and students, health professionals, social service agencies and the general public.
Institute for Brain Aging and Dementia (University of California at Irvine) www.alz.uci.edu The UCI Institute for Brain Aging and Dementia is one of 29 Alzheimer's Disease Centers (ADCs) across the country designated and funded by the National Institute on Aging of the National Institutes of Health. The Institute for Brain Aging and Dementia is also one of 10 Alzheimer's Research Centers of California (ARCCs). The Institute seeks to better understand and discover the causes of Alzheimer's disease, means for effective treatments, ways to help families/caregivers and those diagnosed with the disease.
The Nun Study www.mc.uky.edu/nunnet/ The Nun Study is a longitudinal study of aging and Alzheimer's disease funded by the National Institute on Aging. Participants are 678 American members of the School Sisters of Notre Dame religious congregation who are 75 to 106 years of age.
Non-Alzheimer Dementias
Lewy Body Disease/Dementia with Lewy bodies
Treatment of Dementia With Lewy Bodies at Mayo Clinic in Rochester http://www.mayoclinic.org/lewybody-rst/index.html
Lewy Body Dementia Association www.lewybodydementia.org/
NINDS Dementia With Lewy Bodies Information Page http://www.ninds.nih.gov/health_and_medical/disorders/dementiawithlewybodies_doc.htm
Fact Sheet on Lewy body dementia http://dementia.ion.ucl.ac.uk/candid/factsheets/facts4.htm
Dementia with Lewy Bodies Review, Tanis Ferman, Ph.D. http://www.dcmsonline.org/jax-medicine/2000journals/February2000/lewybodies.htm
Lewy Net http://www.ccc.nottingham.ac.uk/~mpzjlowe/lewy/lewyhome.html
The Lewy Body Dementia Directory http://www.zarcrom.com/users/alzheimers/odem/lewy-d.html
Frontotemporal dementia/Pick’s disease
Treatment of Frontotemporal Dementia at Mayo Clinic in Rochester http://www.mayoclinic.org/frontotemporaldementia-rst/index.html
Association for Frontotemporal Dementia http://www.ftd-picks.org
Pick’s Disease Support Group http://www.pdsg.org.uk/index.htm
NINDS Pick's Disease Information Page http://www.ninds.nih.gov/health_and_medical/disorders/picks_doc.htm
"What If It's Not Alzheimer's?" – Excellent book for patients with frontotemporal dementia and their families http://www.prometheusbooks.com/site/ and search for "not alzheimer"
Primary Progressive Aphasia
Treatment of Primary Progressive Aphasia at Mayo Clinic in Rochester http://www.mayoclinic.org/ppa-rst/index.html
Association for Frontotemporal Dementia – Progressive Aphasia http://www.ftd-picks.org/?p=diseases/progressiveaphasia
Corticobasal Degeneration
Association for Frontotemporal Dementia www.ftd-picks.org/?p=diseases/corticobasaldegeneration
Caregivers Guide to CorticalBasal Ganglionic Degeneration (CBGD) www.tornadodesign.com/cbgd/
NINDS Corticobasal Degeneration Information Page www.ninds.nih.gov/health_and_medical/disorders/cortico_doc.htm
Parkinson’s Institute on Corticobasal Degeneration http://www.parkinsonsinstitute.org/movement_disorders/corticobasal.html
Vascular or Multi-Infarct Dementia
NINDS Multi-infarct Dementia Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/multi-infarctdementia_doc.htm
Creutzfeldt-Jakob Disease/Prion Disease
NINDS Creutzfeldt-Jakob Disease Information Page
http://www.ninds.nih.gov/health_and_medical/pubs/creutzfeldt-jakob_disease_fact_sheet.htm
National Center for Infectious Diseases
http://www.cdc.gov/ncidod/diseases/cjd/cjd.htm
CJD Foundation
http://www.cjdfoundation.org/
Alzheimer Research Forum www.alzforum.org The Alzheimer Research Forum was established for the purpose of enhancing information access and promoting collaboration both within the traditional Alzheimer research community and across the numerous scientific disciplines that can contribute to the global effort to understand and treat Alzheimer's disease. It seeks to support an open, collaborative environment for discussing and debating scientific issues.
Alzheimer Web contains information on Alzheimer's research and offers a mailing list that disseminates information on research developments.
Dana Brain Web www.dana.org/brainweb 175 neuroscientists recommends a group of Web sites that contain information about brain diseases and disorders.
National Alzheimer's Coordinating Center (NACC) www.alz.washington.edu NACC coordinates and fosters collaborative research between 32 Alzheimer's Disease Centers across the United States, funded by the National Institute on Aging. The NACC web site is very useful for people involved in Alzheimer's Disease Research and also a great resource for caregivers as well.
Wisconsin Alzheimer Institute www.medsch.wisc.edu/wai/ Alzheimer research and clinical practice institute affiliated with the University of Wisconsin-Madison.
Mayo Clinic Research Center www.mayoresearch.mayo.edu/mayo/research/alzheimers_center/ The Mayo Alzheimer's Disease Research Center (ADRC) is one of 30 Alzheimer's disease research centers across the country designated and funded by the National Institute on Aging of the National Institutes of Health. The Mayo ADRC is jointly based in Rochester MN and Jacksonville FL
Medline on Alzheimer’s Disease
www.nlm.nih.gov/medlineplus/alzheimersdisease.html
Information from the National Institutes of Health on Alzheimer’s Disease
Washington University’s Alzheimer Center
www.alzheimer.wustl.edu/adrc2/About_Us/overviewADRC.html
Information about dementia and dementia research from Washington University in St. Louis, Missouri directed by John Morris, MD
Google search engine on Alzheimer’s Disease www.google.com/search?hl=en&q=alzheimer%27s+disease&btnG=Google+Search
American Academy of Neurology www.aan.com The AAN Web site provides information about the medical specialty of neurology and disorders of the brain and nervous system, with links to other neurology resources.
American Association for Geriatric Psychiatry www.aagpgpa.org The AAGP is dedicated to promoting the mental health and well being of older people and improving the care of those with late life mental disorders. It enhances the knowledge base and standards of practice in geriatric psychiatry through education and research, and by advocating for the mental health needs of older Americans.
American Geriatrics Society AGS is dedicated to improving the health and well-being of all older adults and seeks to effect change in the provision of health care for older adults by shaping attitudes, policies and practices regarding health care for older people.
American Psychiatric Association www.psych.org The APA Web site provides information on mental illnesses, medications, and public policy advocacy.
American Society on Aging www.asaging.org The ASA seeks to enhance the knowledge and skills of persons working with older adults and their families.
The Association for Frontotemporal Dementias www.ftd-picks.org
National Parkinson's Foundation www.parkinson.org The mission of the NPF is to find the cause and cure for Parkinson's disease and related neurodegenerative disorders through research, to educate general medical practioners, patients, their caregivers and the general public, to provide diagnostic and therapeutic services, and to improve the quality of life for both patients and their caregivers.
Society for Neuroscience www.sfn.org The SCN is the world's largest organization of scientists and physicians dedicated to understanding the brain, spinal cord and peripheral nervous system. The goals of the Society are to advance the understanding of the nervous system by bringing together scientists of various backgrounds and by encouraging research in all aspects of neuroscience, to promote education in the neurosciences, and to inform the public about results and implications of new research.
American Society on Aging’s website www.asaging.org/index.cfm
American Society on Aging ,ASA, is the largest organization of professionals in the field of aging. Their resources, publications, and educational opportunities are geared to enhance the knowledge and skills of people working with older adults and their families.